Seriously, yesterday was one of the longest days ever. So I know I exaggerate a lot, and I know I've had way longer days, but yesterday was just awful waiting.
So Mom had an appointment with the surgeon's PA to get her staples removed at 9 AM. We also had to pack all of our stuff (we did most of it on Monday - Labor Day after watching like 90 million hours of Jon & Kate + 8) that morning, get it in the car and check out before the appointment. All of that went smoothly except for getting things in the car neatly organized. I used to have really bad OCD about organization. I realized years ago that I was stressing out the people around me way too much and learned to chill out. Well, I still wanted the car at least a little decent, but...we did what we could. Of course, Mom shouldn't carry anything over 10 lbs so I had to keep an eye on her.
The PA had told us to come closer to 9:30 and to expect to wait who knows how long. She told us to bring a couple of books and plenty of entertainment. We actually waited for her less time than we ever have. After she removed all 30 staples and answered all of my 74 million questions, we were done with her. We just needed to go to the pain department and have them write a new prescription for Mom's absolutely necessary pain medicine...
...that turned into the worst experience we've had at MD. Honestly, it's been great there. Sure, the reason for being there really stinks, but considering the circumstances, it's been a great place. All of the staff from the cooks in the cafeteria to the 'highest' of doctors have been incredibly gracious and kind...that was the case until yesterday. To make a VERY long story short, we ended up waiting for about 5 hours for a certain department to finally tell us they couldn't do anything about what we'd given them. If they had just told us that very thing from the very beginning, they wouldn't have had to put up with my near-yelling. It's one thing to make me wait a couple of hours. It's quite another to make my mom, who's still way recovering from this ridiculously complicated surgery, wait 5 hours. I wasn't just upset. I was so angry that I almost lost it with those people. And you know how it could've been avoided? Had Mr. Front Desk Man in that department listened to the entire situation, we all would have been a bit happier at the end of the day. So again, long story short, when they finally told us what they could and couldn't do, we just simply went to the pharmacy, and they took care of everything in 45 minutes. I should have done that from the very beginning, but I honestly that that what happened would have happened had we gone to the pharmacy first. I know, none of this is making sense to you, but in my head, I get it.
We finally made it to the LJ around 7:15. I was so mentally exhausted that I couldn't open the mobile computer to blog.
Oh, we got some great news about the cats. My mom's cousin emailed us yesterday and said she'd love to take the cats temporarily until we find a permanent home for them. She also volunteered to proactively help us find a home for them since our plates are still a little full trying to get Mom's house ready (their AC broke and there's just stuff to do) for her to return and doctor's appointments like every other day it seems. Anyway, then this morning I received a promising email about a possible permanent home for the cats. I can't tell you how relieving it is to us! I hated the thought of the SPCA.
Oh, and by the way, the surgeon's PA says that Mom is looking really great. Sure, she lost a little weight, but it was nothing compared to before, and she's just progressing so well. SERIOUS WOW! We're super excited about how she's doing and crazy thankful for it and for your prayers.
I'll try more later...
Wednesday, May 28, 2008
Sunday, May 25, 2008
Need A Kitty?
This was Mom and me yesterday. We've been spending a lot of time outside in the little park areas by the Rotary House and the hospital. It gets pretty old being cooped up in one place, so we found a place where we've been spending most of our time. We sit or lay on the lawn chairs, eat, sleep, talk, whatever. Yes, the Texas heat it making its way, but with the breeze, it hasn't been too bad.
Mom has been doing more and more walking, but we're trying to find the balance of walking to get better and walking a marathon. Yes, the doctor ordered the walking, however, we know that resting is another part of healing.
On Tuesday Mom will get her staples removed...all 30 or 31 of them, and afterwards we can go home. She's not looking forward to the staple removing, but she's ready to be home. We were planning to go straight to her house, but there are logistical issues we need to work out. For one, their AC broke at some point while we were away, and the lovely people the insurance called haven't showed up to repair it. The other major 'issue' (or 2) is that of her cats. I had mentioned before that although my mom is really attached to her kitties, it's just better all around to find someone to adopt them. They had a taker at one point, but the person backed out...and on a side note here, can I just say how frustrating that is? "Swear to your own hurt and change not." God thought it was so important that we keep our word, that He put that in the Bible. I know, I know, I've done it - I've backed out on stuff when I'd given my word, but hopefully that was 10 years ago and have since learned not to do that. If you give someone your word on something, just do it. Swear to your own hurt and change not.
So back to the cats - they're Siamese kitties - a brother and sister. At first my mom wanted to keep them together, but it's really not a big deal now. My mom was especially attached to the girl kitty. She goes and lays on her lap when Mom is working in her office and lays with her on the couch. The boy cat isn't as sweet and doesn't always care for new people, but it just takes him time. After being around me just a few days, he wanted to come around.
Anyway, if you or anyone you know want a couple of kitties, let me know. If they're not gone soon, they may have to go to the SPCA. That may not be so bad, but it would traumatize them I'm sure. They've gotten so used to being spoiled by my mom...it's sad to think of them going off to the SPCA. I've always had a special place in my heart for animals...even cats.
Wednesday, May 21, 2008
P.S.
This was Mom and me as we were leaving the hospital. The lady who took the picture obviously doesn't photograph for a living, but at least we got something.
We Have the Path Report
You know, since the beginning of this ordeal, it's been very hard to accept difficult days after we've had good days. It was easier to understand when Mom was in the middle of treatments and things seemed to get worse. Afterwards, though, I imagined things would get better...only to have her hospitalized twice. Now my mind automatically thinks every single day should be better. Not so today. It wasn't necessarily a bad day; it was just not as good as yesterday and the day before. Mom was in a bit more pain, and honestly, sometimes it's hard to stay upbeat when things aren't great. It's hard for me to accept because I'm 'Susy sunshine' - I've been a positive person for the most part. I'm optimistic. I want everything and everyone to just be happy-go-lucky all the time. When it's not so, it can be challenging for me not only to understand but to deal with it.
Anyway, all that to say that it wasn't a bad day, but we've had better. That's just how it is sometimes, and it's during those times that we have to look beyond the present circumstances and to...what? Off of ourselves and to God, who has our lives in His hands. He knows the why's of the what's. He orchestrates everything according to His will and for our good. Why He allows ugh stuff sometimes is beyond us, but this is for sure - He does and will use it all. Nothing goes to waste.
On a really great note - we got the pathology report from the entire removed tumor, or tissue area. The surgeon's PA told us over the phone, which is something she says she rarely does, but we've become really close to her and (she) didn't mind telling us.
The report says something like this (oh, and we'll get a written one on Tuesday, after which I'll be able to give a better report) - what was removed was now just scar tissue. It had the complete treatment effect. Three additional levels of testing revealed no more tumor cells were there, no more cancer cells. Eighteen lymph nodes were removed with the margin, and ALL of them returned negative for tumor (cancer). ALL margins were negative.
So what that says is that the treatment did what it was supposed to - not only did it shrink the tumor, but it basically just left it as scar tissue. It was dead. There were no living cancer cells. And the margins from what he removed had no cancer.
Friends, that's AMAZING news. Isn't my God good?
Anyway, all that to say that it wasn't a bad day, but we've had better. That's just how it is sometimes, and it's during those times that we have to look beyond the present circumstances and to...what? Off of ourselves and to God, who has our lives in His hands. He knows the why's of the what's. He orchestrates everything according to His will and for our good. Why He allows ugh stuff sometimes is beyond us, but this is for sure - He does and will use it all. Nothing goes to waste.
On a really great note - we got the pathology report from the entire removed tumor, or tissue area. The surgeon's PA told us over the phone, which is something she says she rarely does, but we've become really close to her and (she) didn't mind telling us.
The report says something like this (oh, and we'll get a written one on Tuesday, after which I'll be able to give a better report) - what was removed was now just scar tissue. It had the complete treatment effect. Three additional levels of testing revealed no more tumor cells were there, no more cancer cells. Eighteen lymph nodes were removed with the margin, and ALL of them returned negative for tumor (cancer). ALL margins were negative.
So what that says is that the treatment did what it was supposed to - not only did it shrink the tumor, but it basically just left it as scar tissue. It was dead. There were no living cancer cells. And the margins from what he removed had no cancer.
Friends, that's AMAZING news. Isn't my God good?
Tuesday, May 20, 2008
Out
Mom was released from hospital today to the Rotary House - the MD Anderson Hotel. We got here around 1, checked in, ate lunch, walked around and then napped for almost 2 hours. I need to get going, but I'll write more tomorrow.
Mom is feeling okay. She's had a bit of nausea since yesterday, but we're trying to keep in under control.
Mom is feeling okay. She's had a bit of nausea since yesterday, but we're trying to keep in under control.
Monday, May 19, 2008
I Might be a Boring Daughter
Mom has been doing awesome! Yesterday was a great day and today has been almost just as great. She had a little nausea today, but other than that, things are going well. We're only waiting on the ostomy nurses to help us again with changing the bag, and then we're good to go. Mom is walking, walking, walking, and she's drinking, drinking, drinking - water and juice. Her magnesium and potassium waver a bit, so they recommended she sip on broths and stuff. She loves soup, but she doesn't necessarily like sipping them instead of water. So I'm trying my best to encourage her to 'snack' on soup and crackers. Of course, with nausea none of us like to eat anything. Overall, though, Mom is making great progress.
I'm trying to find ways to entertain Mom during the dull moments. Now that she's feeling so well, I'm trying to keep her out of bed as well because if her surgeon sees her in it, he'll get on to her. So we walk, eat, read (for the first time in my life reading is getting old), watch some TV...do crosswords...today I was packing up our stuff...it's really the only day that has been like this. Other days there are nurses, docs, people. When she wasn't feeling well, she would sleep. I thank God for the 'down' time though. It just means things are going really well. THANK GOD!
I'm trying to find ways to entertain Mom during the dull moments. Now that she's feeling so well, I'm trying to keep her out of bed as well because if her surgeon sees her in it, he'll get on to her. So we walk, eat, read (for the first time in my life reading is getting old), watch some TV...do crosswords...today I was packing up our stuff...it's really the only day that has been like this. Other days there are nurses, docs, people. When she wasn't feeling well, she would sleep. I thank God for the 'down' time though. It just means things are going really well. THANK GOD!
Sunday, May 18, 2008
Tubes Be Gone
In spite of the 'pain' challenges that we've had, it's been awesome to see the victories we've had. One of those is the removal of the tubes. Day to day, one more tube or the like has been removed from Mom. As of right now, she is no longer hooked up to anything, including the Foley catheter. The only thing that's left is the epidural. The epidural isn't actually hooked it up to anything. The doctors just haven't removed it.
This morning they began the weaning process and are transitioning Mom from the epidural to oral medication. She walked quite a bit already and is allowed to eat whatever she desires. The only thing she has to be careful with is raw fruits and vegetables. She has an appetite and is still tolerating food really well. Let's pray this continues.
I was telling Mom earlier how proud of her I was for fighting so hard to get well. I mean, if I had this huge, long cut in my abdomen and knew I would be in pain from walking, I wouldn't do it. I think I'd be one of those people who just lays in bed. She knows it's the way to heal, though, and she's going above and beyond what the doctor ordered. Sure, it wears her out, but she does it anyway. Sure, it causes pain, but she does it anyway. Mom is determined to get well. So anyway, I was telling her how proud of her I was, and she wouldn't take the credit. She just said, "Thank God. Thank the Lord He is helping me so much. He is so good to me."
And it's true. God is so good to us. I complain so much about so many things when really I have nothing about which to complain. Nothing. Nothing compared to the blind man down the hall who is recovering from surgery and depends on the nurses to help him walk around. He does it without complaint and with so much joy. I have nothing to complain about compared to little Anya, who has been battling Leukemia since last June and has to deal with all of the crazyness of the side effects from treatment. I have nothing to complain about compared to so many people, including my mom. Yet, she feels like she can't really complain and doesn't.
This morning they began the weaning process and are transitioning Mom from the epidural to oral medication. She walked quite a bit already and is allowed to eat whatever she desires. The only thing she has to be careful with is raw fruits and vegetables. She has an appetite and is still tolerating food really well. Let's pray this continues.
I was telling Mom earlier how proud of her I was for fighting so hard to get well. I mean, if I had this huge, long cut in my abdomen and knew I would be in pain from walking, I wouldn't do it. I think I'd be one of those people who just lays in bed. She knows it's the way to heal, though, and she's going above and beyond what the doctor ordered. Sure, it wears her out, but she does it anyway. Sure, it causes pain, but she does it anyway. Mom is determined to get well. So anyway, I was telling her how proud of her I was, and she wouldn't take the credit. She just said, "Thank God. Thank the Lord He is helping me so much. He is so good to me."
And it's true. God is so good to us. I complain so much about so many things when really I have nothing about which to complain. Nothing. Nothing compared to the blind man down the hall who is recovering from surgery and depends on the nurses to help him walk around. He does it without complaint and with so much joy. I have nothing to complain about compared to little Anya, who has been battling Leukemia since last June and has to deal with all of the crazyness of the side effects from treatment. I have nothing to complain about compared to so many people, including my mom. Yet, she feels like she can't really complain and doesn't.
Saturday, May 17, 2008
Soft Diet
Mom is on a soft diet now and has tolerated her food very well. Tomorrow morning they will give her oral medication and turn the epidural off. If all goes well and her pain is managed, they will remove the epidural. Physical pain is junk. Yes, Mom's pain is manged for the most part, but it stinks that it has to be there at all.
She walked quite a bit today. It was probably twice as much as yesterday. All the walking definitely drained her, so hopefully she can sleep well and for a while tonight. We've both been waking up around 3 when the nurses do labs and all that stuff (though they check on her vitals throughout the entire night), and we have a difficult time really sleeping afterwards. We doze off here and there, but real sleep from 3 on isn't really real.
One of the doctors who works with Mom's surgeon told us that they want to release her on Monday. As long as things go as planned tomorrow, we'll head across the street to the Rotary House, where we'll stay for another week so the doctors can keep a close eye on her.
Today was better, and we'll take that. My prayer request continues to be that her pain is eased and that she continues to progress at this pace. She's doing awesome considering the kind of surgery she just had. I thank God that He's given us so many victories already. Mom is right on target, and I couldn't ask for more. Please pray also that the side effects of the stuff she's on wouldn't be so crazy. Mom forgets so much stuff, and it really bothers her. These drugs would make any of us loopey. Hopefully it'll be better with the oral meds.
Thank you, again, for your prayers. God knows ahead of time what we need. He can take care of it without us; however, he asks us to pray, and I thank you for doing that because we couldn't make it without you.
She walked quite a bit today. It was probably twice as much as yesterday. All the walking definitely drained her, so hopefully she can sleep well and for a while tonight. We've both been waking up around 3 when the nurses do labs and all that stuff (though they check on her vitals throughout the entire night), and we have a difficult time really sleeping afterwards. We doze off here and there, but real sleep from 3 on isn't really real.
One of the doctors who works with Mom's surgeon told us that they want to release her on Monday. As long as things go as planned tomorrow, we'll head across the street to the Rotary House, where we'll stay for another week so the doctors can keep a close eye on her.
Today was better, and we'll take that. My prayer request continues to be that her pain is eased and that she continues to progress at this pace. She's doing awesome considering the kind of surgery she just had. I thank God that He's given us so many victories already. Mom is right on target, and I couldn't ask for more. Please pray also that the side effects of the stuff she's on wouldn't be so crazy. Mom forgets so much stuff, and it really bothers her. These drugs would make any of us loopey. Hopefully it'll be better with the oral meds.
Thank you, again, for your prayers. God knows ahead of time what we need. He can take care of it without us; however, he asks us to pray, and I thank you for doing that because we couldn't make it without you.
Friday, May 16, 2008
Where is the Meat?
Mom was dozing off at some point and woke up asking where the roast was. She makes me laugh.
Mom walked again and had just gotten into bed when her surgeon came to see her. He gives her a really hard time about being in bed, and I know it gets to my mom a bit. He does it in humor but also to encourage her. What can I say? He's a surgeon.
The pain is still semi-managed. If mom sits or lays still, she's okay. The whole moving around thing is still terribly hard on her incision and whatever all was messed with during surgery. Yes, she's doing better, and we're thankful for that. We just want to see less and less pain with more and more progress. Dr. Skibber is well pleased with mom's improvement and said she may be on a soft diet tomorrow. Tonight she ate some apple sauce and yogurt. She tolerated them pretty well.
So now I pray for a good night for us and a better day tomorrow and the next day and the day after that.
Mom walked again and had just gotten into bed when her surgeon came to see her. He gives her a really hard time about being in bed, and I know it gets to my mom a bit. He does it in humor but also to encourage her. What can I say? He's a surgeon.
The pain is still semi-managed. If mom sits or lays still, she's okay. The whole moving around thing is still terribly hard on her incision and whatever all was messed with during surgery. Yes, she's doing better, and we're thankful for that. We just want to see less and less pain with more and more progress. Dr. Skibber is well pleased with mom's improvement and said she may be on a soft diet tomorrow. Tonight she ate some apple sauce and yogurt. She tolerated them pretty well.
So now I pray for a good night for us and a better day tomorrow and the next day and the day after that.
Tapioca Pudding
Last night Mom had a pretty good night. I really loved our overnight nurse because she was so attentive. Mom slept a good 5 hours without waking. After 3 a.m., though, the nurses and people were in and out. We finally ended up turning the lights on around 6 I think. Shortly after 7 AM, Mom got up to walk, and it was good. She had an easier time than yesterday and went around the nurses' station twice. She then sat in a chair for a while just to stay out of bed and tried walking again. This time it wasn't so good. She ended up in pretty bad pain and had to go back to bed after a bit.
We then had a few visitors, which was awesome! The doctor said that key to Mom's recovery is a lot of cheerleading. The phone calls, visits, etc. are all very encouraging to her.
We just returned from another walk that wasn't as easy as the first this morning, but it was definitely not as bad as the second one. Mom is so brave to get up and keep trying after experiencing the pain she has. She's pretty stinkin amazing! I'm truly blessed to have a mom who is such a fighter in every way. She's fighting for her life, and I couldn't be more proud of or thankful to her for never throwing in the towel.
Please continue to pray that her pain is not just controlled, but that it is also eased. Jesus knows a kind of pain that none of us have ever imagined, so I know that He has compassion on her. It's a comfort to know that He really relates to our circumstances. His grace is sufficient.
Oh, one more thing - Mom is now on a full liquid diet, which includes yogurt and pudding. She has already tried a few bites of pudding and some jello. It's all good so far. It's common after a surgery like this to have nausea and vomiting because the insides, especially the intestines have been sleeping. So far so good.
We then had a few visitors, which was awesome! The doctor said that key to Mom's recovery is a lot of cheerleading. The phone calls, visits, etc. are all very encouraging to her.
We just returned from another walk that wasn't as easy as the first this morning, but it was definitely not as bad as the second one. Mom is so brave to get up and keep trying after experiencing the pain she has. She's pretty stinkin amazing! I'm truly blessed to have a mom who is such a fighter in every way. She's fighting for her life, and I couldn't be more proud of or thankful to her for never throwing in the towel.
Please continue to pray that her pain is not just controlled, but that it is also eased. Jesus knows a kind of pain that none of us have ever imagined, so I know that He has compassion on her. It's a comfort to know that He really relates to our circumstances. His grace is sufficient.
Oh, one more thing - Mom is now on a full liquid diet, which includes yogurt and pudding. She has already tried a few bites of pudding and some jello. It's all good so far. It's common after a surgery like this to have nausea and vomiting because the insides, especially the intestines have been sleeping. So far so good.
Thursday, May 15, 2008
Is It Morning or Night?
11 PM - That's what Mom asks when she wakes up from a nap. When her pain goes up to where the pump isn't working, the nurse will give her this burst of other stuff, and usually it puts her to sleep. We (I) have to work on waking her up to walk. The pain control is for her to get up and walk. She has now walked a total of 4 times today, and that's good. The nurse also wants Mom to sit in the chair rather than lay in bed because it keeps blood flowing, etc.
All of the staff here has been great. Yes, we have some favorite nurses (it's hard not to), but at times, it's like they all become our favorites. Our night nurse is all about thinking positive. All of the nurses are, but this nurse tells Mom constantly stuff like, "...you're not weak, don't be scared, the pain will go...you're not weak...positive, positive, positive..."
So now I just ask that you pray that this pain will stay under control. The first 72 hours, the time period for the worst of the pain, is coming tomorrow. I'm definitely hopeful that truly the pain is subsiding even now and will continue to do so.
Oh, another quick prayer request - actually this is 2 - Mom and her husband have been trying to sell their home and move from El Campo to Lake Jackson to be closer to the rest of the family. So far, nothing has happened with that. Sure, it would be in the middle of all this, but it'd be really great to be closer to the family than way out there while she's recovering and also going through another phase of chemo in the next few months. Please pray that their home sell soon.
Lastly...Mom has been trying to get rid of her 2 cats. She loves those cats, but in the long run, it'll be way better for her not to have the cats around. They've been on their own since February basically, and that makes us sad. Don't worry - she's not cruel; someone has been checking on them, feeding them, cleaning out the litter, and all that good stuff. They're good cats, but again, in the long run, it's better that she not have that worry. We thought they had found a home, but it hasn't worked out and may not. Mom wanted to keep them together, but th more she thought about it, the less important that was as long as they both went to good homes. So if you know anyone who'd like a cat or two, let me know.
This is Mom the day of the surgery...well, during the evening sometime after she was in a room.
This is tonight. Notice the tubes have been removed and how much better she's doing.
All of the staff here has been great. Yes, we have some favorite nurses (it's hard not to), but at times, it's like they all become our favorites. Our night nurse is all about thinking positive. All of the nurses are, but this nurse tells Mom constantly stuff like, "...you're not weak, don't be scared, the pain will go...you're not weak...positive, positive, positive..."
So now I just ask that you pray that this pain will stay under control. The first 72 hours, the time period for the worst of the pain, is coming tomorrow. I'm definitely hopeful that truly the pain is subsiding even now and will continue to do so.
Oh, another quick prayer request - actually this is 2 - Mom and her husband have been trying to sell their home and move from El Campo to Lake Jackson to be closer to the rest of the family. So far, nothing has happened with that. Sure, it would be in the middle of all this, but it'd be really great to be closer to the family than way out there while she's recovering and also going through another phase of chemo in the next few months. Please pray that their home sell soon.
Lastly...Mom has been trying to get rid of her 2 cats. She loves those cats, but in the long run, it'll be way better for her not to have the cats around. They've been on their own since February basically, and that makes us sad. Don't worry - she's not cruel; someone has been checking on them, feeding them, cleaning out the litter, and all that good stuff. They're good cats, but again, in the long run, it's better that she not have that worry. We thought they had found a home, but it hasn't worked out and may not. Mom wanted to keep them together, but th more she thought about it, the less important that was as long as they both went to good homes. So if you know anyone who'd like a cat or two, let me know.
This is Mom the day of the surgery...well, during the evening sometime after she was in a room.
This is tonight. Notice the tubes have been removed and how much better she's doing.
Into a Different Room
5:45 - Mom sleeps. She has been moved to a permanent room (out of ICU basically). Her goal is to walk 3 more times today (she's walked twice). We tried about an hour ago, and that didn't go so well. Her pain shot up like crazy, and we had to work hard and watch her agonize trying to get back in bed. The nurse gave her something that worked pretty quickly this time, so that's good. In the past, it took a while for that to work, so I'm hoping this means progress.
The ostomy nurses came to see us earlier to give us our first lesson emptying and changing the bag. All this medical stuff fascinates me more and more every day. I think I should have been a surgeon. I don't think I could do the nurse thing, but cutting and stapling people - that might be fun.
After a bit mom will have to wake up to try the walking thing again. As her surgeon came and told us earlier - the goal of total pain control is so that she can get up and move around, not sit or lay in bed. That can lead to many problems.
Can I just say how grateful I am to you? If you're reading this, most likely you are praying for us, and that means EVERYTHING! We know we're not in this alone, and that really is what keeps us all 'hanging in there.' I'm so grateful to have the friends and family I do who are so great to stand by us when we need it. THANK YOU for your love!
The ostomy nurses came to see us earlier to give us our first lesson emptying and changing the bag. All this medical stuff fascinates me more and more every day. I think I should have been a surgeon. I don't think I could do the nurse thing, but cutting and stapling people - that might be fun.
After a bit mom will have to wake up to try the walking thing again. As her surgeon came and told us earlier - the goal of total pain control is so that she can get up and move around, not sit or lay in bed. That can lead to many problems.
Can I just say how grateful I am to you? If you're reading this, most likely you are praying for us, and that means EVERYTHING! We know we're not in this alone, and that really is what keeps us all 'hanging in there.' I'm so grateful to have the friends and family I do who are so great to stand by us when we need it. THANK YOU for your love!
She Walks
10:15 AM - Last night was a bit rough to a point. Actually, yesterday was a bit rough. There were several issues when it came to pain control. Mom has developed a tolerance for some of these narcotics because she has needed so much even just recently. The problem with giving her large doses of this and that is that her already low blood pressure could drop even more. The third major issue with the pain was it seemed the epidural was only reaching the right side of her body. When they did pain tests, it was the left that was the worst. They wanted to just move the catheter a tiny bit, but Mom's blood was too thin, and the doctors didn't want even a little bleeding.
The solution - while waiting for the plasma to thicken Mom's blood, she was given a couple of different pain meds, Between the hours of 7 and midnight, we had the pain management people in the room at least 3 times administering all kinds of stuff. Once her blood was finally thick enough, they moved the catheter just slightly. From about 11 PM to 3 AM Mom slept pretty soundly. At 3 the nurses came in and out and this and that.
So far so good today. Her blood pressure did drop way low (systolic # in the 60's and diastolic in the 40's), but the nurses and doctors are all on top of it.
Mom got up and sat in a chair again for quite a while. Then she wanted to try walking. We went around he nurses station one time, and she did quite well. She was hunching the left side of her body down a little so we kept reminded her to try to straighten up. Overall, though, she did really great. Of course, all of that this morning and the disturbed sleep made her pretty tired. She dozed off a bit earlier as we were getting ready to use the spirometer.
Mom should be moved into a room at some point today. The pain doctors who have worked with us reassured me that they will continue to monitor her closely here and when we move to a room as well.
Please pray:
-for the pain to really be managed and to be eased. They told us the first 72 hours would be the worst. I look forward to the acute pain leaving, but in the meantime, pray that pain would continue to be manged.
-for Mom's blood pressure not to drop as she continues to use the epidural.
-for continued overall healing.
The solution - while waiting for the plasma to thicken Mom's blood, she was given a couple of different pain meds, Between the hours of 7 and midnight, we had the pain management people in the room at least 3 times administering all kinds of stuff. Once her blood was finally thick enough, they moved the catheter just slightly. From about 11 PM to 3 AM Mom slept pretty soundly. At 3 the nurses came in and out and this and that.
So far so good today. Her blood pressure did drop way low (systolic # in the 60's and diastolic in the 40's), but the nurses and doctors are all on top of it.
Mom got up and sat in a chair again for quite a while. Then she wanted to try walking. We went around he nurses station one time, and she did quite well. She was hunching the left side of her body down a little so we kept reminded her to try to straighten up. Overall, though, she did really great. Of course, all of that this morning and the disturbed sleep made her pretty tired. She dozed off a bit earlier as we were getting ready to use the spirometer.
Mom should be moved into a room at some point today. The pain doctors who have worked with us reassured me that they will continue to monitor her closely here and when we move to a room as well.
Please pray:
-for the pain to really be managed and to be eased. They told us the first 72 hours would be the worst. I look forward to the acute pain leaving, but in the meantime, pray that pain would continue to be manged.
-for Mom's blood pressure not to drop as she continues to use the epidural.
-for continued overall healing.
Wednesday, May 14, 2008
8 PM - Pain management - so hard I'm sure, but why can't they just giver her a shot to make it all go away? I wish it was that easy. Not only is low blood pressure an issue but so is the fact that Mom has become immune to a lot of pain meds from having to take them the past few months. We'll see what the pain management team has to say tonight.
The issue during the past several hours has been pain control. Mom's pain was managed this morning, but her blood pressure was dropping too low for the doctors to comfortably continue the same regimen. While they were adjusting, Mom's pain got way bad for a while. It then came down, but it would spike again. It was like that for a while. So far it's been managed for a good little while.
The surgeon even came in at one point. He asked why they hadn't made more of an effort to get Mom up. Hello! His big hurry is that laying in bed too long after this kind of major surgery without getting up isn't...good. The way to heal is to get up and out of bed. His words - walk, walk, walk. He had mom take off her incision bandage on her own. It took her a good 5 minutes because she had been in a bit of pain, but she did it. We got to see her incision for the first time, and according to them it looks good. It's pretty long - not 12 inches, but maybe 8...?? I'll measure later.
An ostomy nurse came in to just talk to us and said that Mom's output means she's progressed and ahead of the game. She also said that pain management for the first 3 days (but especially the first 2) after surgery can be really difficult. She encouraged Mom to constantly use her pump and to let someone know immediately if she wasn't getting relief. The past 40 minutes have been okay.
How to pray -
- Pain Management - We're still working on this, so pray that we find Mom's personal prescription for this quickly.
- Continued protection from infection
- Recovery
- Nausea - They've removed a tube from Mom's nose that was connected to her stomach. It drained stomach acid that kept her from vomiting. It's gone...
...and they want to get her up to a chair now...gotta go...
The surgeon even came in at one point. He asked why they hadn't made more of an effort to get Mom up. Hello! His big hurry is that laying in bed too long after this kind of major surgery without getting up isn't...good. The way to heal is to get up and out of bed. His words - walk, walk, walk. He had mom take off her incision bandage on her own. It took her a good 5 minutes because she had been in a bit of pain, but she did it. We got to see her incision for the first time, and according to them it looks good. It's pretty long - not 12 inches, but maybe 8...?? I'll measure later.
An ostomy nurse came in to just talk to us and said that Mom's output means she's progressed and ahead of the game. She also said that pain management for the first 3 days (but especially the first 2) after surgery can be really difficult. She encouraged Mom to constantly use her pump and to let someone know immediately if she wasn't getting relief. The past 40 minutes have been okay.
How to pray -
- Pain Management - We're still working on this, so pray that we find Mom's personal prescription for this quickly.
- Continued protection from infection
- Recovery
- Nausea - They've removed a tube from Mom's nose that was connected to her stomach. It drained stomach acid that kept her from vomiting. It's gone...
...and they want to get her up to a chair now...gotta go...
Drugs
The pain management team came in and are making some tweaks to the epidural. They'll be reducing the anesthetic and will increase the opiates/narcotics. Increasing the anesthetic will only make Mom's already low blood pressure drop more, and they don't want to do that. Increasing the narcotics won't affect the blood pressure in that same way. I'm really glad they're keeping such close tabs on this. The anesthesiologist is very pleased with how Mom is doing.
Our nurse for the morning, Cecelia, will be giving Mom some plasma to help her blood to thicken/clot. Mom was bleeding a little longer than normal, and the plasma should help with that. Later on they'll determine whether or not she should have a blood transfusion.
Our nurse for the morning, Cecelia, will be giving Mom some plasma to help her blood to thicken/clot. Mom was bleeding a little longer than normal, and the plasma should help with that. Later on they'll determine whether or not she should have a blood transfusion.
A Good Night
Mom had a good night. Her pain was under control, and at one point she even went several hours without using the pain pump. She's awake now and is remembering a few things and people from yesterday. She was a bit disoriented upon waking, asking if it was 6 a.m. or 6 p.m., but that's completely normal. Between 3 and 6 this morning, the nurses were in just doing their thing, changing the epidural med bag, the IV, etc, so our rest was a little disturbed. Otherwise, though, we both slept pretty soundly.
Dr. Chang, one of the operation docs, came in to tell us they're going to keep a close eye on Mom's bloodwork. In her terms, it was a little 'out of whack,' and they want to draw more labs to see what it's about. They had to infuse some vitamin K last night, and her hemoglobin is low. They'll just continue to watch this carefully and will take the necessary steps to adjust her needs.
Good news - her temperature did go down. Mom has been good about using the spirometer when she's awake. The next goal is to get her out of bed and in a chair. Dr. Skibber's orders are walk, walk, walk, get out of bed, bed, bed. Mom actually asked to walk around 6:30 this morning without being prompted to, but she changed her mind. She is definitely tired of being in the same position, so pretty soon I'm sure we'll attempt getting her out of bed.
Dr. Chang, one of the operation docs, came in to tell us they're going to keep a close eye on Mom's bloodwork. In her terms, it was a little 'out of whack,' and they want to draw more labs to see what it's about. They had to infuse some vitamin K last night, and her hemoglobin is low. They'll just continue to watch this carefully and will take the necessary steps to adjust her needs.
Good news - her temperature did go down. Mom has been good about using the spirometer when she's awake. The next goal is to get her out of bed and in a chair. Dr. Skibber's orders are walk, walk, walk, get out of bed, bed, bed. Mom actually asked to walk around 6:30 this morning without being prompted to, but she changed her mind. She is definitely tired of being in the same position, so pretty soon I'm sure we'll attempt getting her out of bed.
Tuesday, May 13, 2008
Vital Signs
Mom is now in the post-operative recovery room. Her pain is definitely being controlled. It's funny - she'll wake up, ask what time it is, and pump the paid meds. A while ago she asked if it was time to go yet. Then she looked around and realized where she was. Hey, as long as the pain is under control, she can say all those silly things. They really amuse us every time we hear them. Anyway, a doctor from pain control came in to check on things and did her tests. Because Mom's blood pressure has always run low, they don't want to increase certain medications, but they'll adjust the speed at which they're infused. The blood pressure thing can be tricky. Sure, the beeping thing could potentially be annoying, but I love the fact that these machines can constantly monitor everything.
Tomorrow they'll move her to another floor into a permanent room where she will stay for the remainder of the week. I got to take a peek at her ileostomy, and let me tell you - technology and medicine have come a long way. Who ever would've thought to cut your small intestine, turn it so that it's coming through to the surface of your skin, turn it inside out, voila?! I mean, really, who thought to do that? God is pretty genius to give us such great minds and creativity.
Mom's temperature was rising a bit ago. It's almost at 101, so they really want her to use the incentive spirometer (the breathing tool) every hour to bring it down. The spirometer prevents fluids from staying in her lungs.
Okay, so how to pray:
-Pain - The management team seems to be monitoring it closely, but pray that it continues to improve with time
-Health - Yes, pray for overall health, but especially in the hospital as bacteria can definitely breed here. Pray Mom doesn't get any infections.
-Blood Pressure - As I sit and write this, Mom's blood pressure is going up and down. I notice how low it goes because the lil alarm goes off every time. It rises immediately, but please pray that this wouldn't become an issue. It's gone off quite a bit in the past 10 minutes so the nurses are keeping a close watch on all of it.
-Recovery - Tomorrow Mom has to begin walking. They'll get her up quite a bit, and the surgeon said this is what she must do to recover. Pray that we're able to do this.
Thank you all again!
Tomorrow they'll move her to another floor into a permanent room where she will stay for the remainder of the week. I got to take a peek at her ileostomy, and let me tell you - technology and medicine have come a long way. Who ever would've thought to cut your small intestine, turn it so that it's coming through to the surface of your skin, turn it inside out, voila?! I mean, really, who thought to do that? God is pretty genius to give us such great minds and creativity.
Mom's temperature was rising a bit ago. It's almost at 101, so they really want her to use the incentive spirometer (the breathing tool) every hour to bring it down. The spirometer prevents fluids from staying in her lungs.
Okay, so how to pray:
-Pain - The management team seems to be monitoring it closely, but pray that it continues to improve with time
-Health - Yes, pray for overall health, but especially in the hospital as bacteria can definitely breed here. Pray Mom doesn't get any infections.
-Blood Pressure - As I sit and write this, Mom's blood pressure is going up and down. I notice how low it goes because the lil alarm goes off every time. It rises immediately, but please pray that this wouldn't become an issue. It's gone off quite a bit in the past 10 minutes so the nurses are keeping a close watch on all of it.
-Recovery - Tomorrow Mom has to begin walking. They'll get her up quite a bit, and the surgeon said this is what she must do to recover. Pray that we're able to do this.
Thank you all again!
Pain, Pain Go Away
So a couple of hours ago they realized that my mom's pain wasn't being controlled very well at all. She was pretty much in agony, and I'm very surprised they even let me in to see her then. Let me just say that nobody should have to see anyone experience that much pain. Let me also say that nobody should have to suffer or watch someone suffer from this thing called cancer. The thing is that we live in this crazy, sinful world in which there are ridiculous diseases and sicknesses. There's nothing we can do about that. But I'm just glad that we have this incredibly merciful Savior who gives us the grace to live in such a place.
...but back to what I was saying...the pain control wasn't really control at all. I don't think 'manage' is even a term to use for it. So they've decided to do this thing called epidural analgesia. Basically a catheter is just next to Mom's spinal cord giving her a bunch of stuff - to numb her abdominal area and some opioids as well. Even though it wasn't technically visiting hours, they let me in to see her after the procedure for the catheter just so I'd be more at ease (after having seen her in so much pain). During visiting hours the rest of the family went in for their chance. It's cute - the things people say when they're out of it, like "Thank you for praying and for your parents..."
Now is the road to recovery from this. Please pray that the pain will continue to be manged for real and that her recovery would be a speedy, speedy, SPEEDY one. Did I mention speedy? Yes, we're in a hurry for her to be better.
Friends, I appreciate all of you. I was such the nutty basket case this morning, and I really appreciate you gals who listened while I boo-hoooooooooooood and sent the most pessimistic text messages. God is the God of peace and keeps those in peace whose mind is stayed on Him because they trust in Him. I'm learning to do that like never before.
...but back to what I was saying...the pain control wasn't really control at all. I don't think 'manage' is even a term to use for it. So they've decided to do this thing called epidural analgesia. Basically a catheter is just next to Mom's spinal cord giving her a bunch of stuff - to numb her abdominal area and some opioids as well. Even though it wasn't technically visiting hours, they let me in to see her after the procedure for the catheter just so I'd be more at ease (after having seen her in so much pain). During visiting hours the rest of the family went in for their chance. It's cute - the things people say when they're out of it, like "Thank you for praying and for your parents..."
Now is the road to recovery from this. Please pray that the pain will continue to be manged for real and that her recovery would be a speedy, speedy, SPEEDY one. Did I mention speedy? Yes, we're in a hurry for her to be better.
Friends, I appreciate all of you. I was such the nutty basket case this morning, and I really appreciate you gals who listened while I boo-hoooooooooooood and sent the most pessimistic text messages. God is the God of peace and keeps those in peace whose mind is stayed on Him because they trust in Him. I'm learning to do that like never before.
The Longest Four Hours
At around 12 noon, Dr. Skibber came out. He had finished the surgery and said everything went as well as could be expected. He did save the rectum (sorry, more TMI), so she won't require a permanent 'bag.' That was my mom's biggest worry. The best news is that the cancer hasn't spread to any other organs. She does have some 'permanent' scar tissue in her small intestine from the prior crazy surgery and from the radiation. That, Dr. Skibber said, is the case with anyone who's had abdominal or intestinal surgery. Yes, there could be minor issues with that, but it's nothing major. He let us know yesterday that if there was a significant amount of scar tissue or damage there, that he would cut it. It wasn't necessary, so that's good.
We still won't be able to see her for another 1-3 hours. She'll remain in the hospital for about a week and across the street for another week.
Hmmm...I think that's basically it for now. Thanks bye.
We still won't be able to see her for another 1-3 hours. She'll remain in the hospital for about a week and across the street for another week.
Hmmm...I think that's basically it for now. Thanks bye.
Sunday, May 11, 2008
Too Much Rice Pudding
So I've been in bed pretty much all day. Yesterday we celebrated Mother's Day for my Granny at my uncle Chris' house, and I must have eaten a bit too much of something. I woke up at 1:30 this morning feeling really nauseated, but when I tried to make it come out so I could feel better, there wasn't much there. TMI, I know. So all day today, I've had stomach issues and fever. NOT good.
Today we were supposed to be packing. Tomorrow morning we have to be at the hospital at 8 for surgery prep stuff. We then planned on spending the night in Houston just down the street from the hospital because Mom's surgery will be first thing on Tuesday morning (though we don't know exactly what time yet). What a way for Mom to spend Mother's Day - packing because I couldn't really muster up enough energy to help her. When my brother and his family came to see Mom, I did ask my SIL to help me at least pack my stuff so my mom wouldn't have so much. Thanks, Naticia!
I make it sound like it was a bad day for Mom...it really wasn't. I just felt bad because she had to tend to me somewhat. She did have great visitors, though, which helped keep her mind off stuff.
I don't know if I'll be able to access my blog tomorrow or before her surgery. After the surgery Tuesday, I'll do my best to post as soon as I can. In the meantime, here's how to pray:
-Peace - Mom hasn't had the best time with surgeries before, so understandably, she's a bit nervous about Tuesday.
-Surgery - Pray that all goes even better than expected, no complications
-Health - Pray that whatever it is I had today would be completely gone and that my mom won't have a hint of it.
I know there are other things, but I'm sure you can think of them better than I can at this moment. Thank you all!
Today we were supposed to be packing. Tomorrow morning we have to be at the hospital at 8 for surgery prep stuff. We then planned on spending the night in Houston just down the street from the hospital because Mom's surgery will be first thing on Tuesday morning (though we don't know exactly what time yet). What a way for Mom to spend Mother's Day - packing because I couldn't really muster up enough energy to help her. When my brother and his family came to see Mom, I did ask my SIL to help me at least pack my stuff so my mom wouldn't have so much. Thanks, Naticia!
I make it sound like it was a bad day for Mom...it really wasn't. I just felt bad because she had to tend to me somewhat. She did have great visitors, though, which helped keep her mind off stuff.
I don't know if I'll be able to access my blog tomorrow or before her surgery. After the surgery Tuesday, I'll do my best to post as soon as I can. In the meantime, here's how to pray:
-Peace - Mom hasn't had the best time with surgeries before, so understandably, she's a bit nervous about Tuesday.
-Surgery - Pray that all goes even better than expected, no complications
-Health - Pray that whatever it is I had today would be completely gone and that my mom won't have a hint of it.
I know there are other things, but I'm sure you can think of them better than I can at this moment. Thank you all!
Thursday, May 08, 2008
Abiding and Waiting
This hasn't been the greatest week for Mom. She had some vomiting a couple of times due to a diet coke and then attempting a salad. She has still been eating well, but because of the vomiting and a little diarrhea, she's lost weight. This morning she wasn't even hitting 95 lbs. In order for her to heal properly post-surgery, she has to be at a point in which she's strong (maintaining weight, no vomiting, etc.). We go in on Monday to do pre-operative tests and such, and if things remain this way, I have a feeling the surgeon will postpone. He doesn't want to put her in a situation of complications after the surgery.
It can be very discouraging to have this kind of issue so close to the date of the surgery. I wonder what in the world I'm doing wrong, what I could've done to prevent it, blah blah. The thing is - I think we're all doing the best we can considering the circumstances. All else is out of our hands. We have to just put our trust in God for the timing of everything.
Mom is also trying to sell her house. She lives about an hour and a half away from the rest of the family, and it's no longer convenient. The reason she and her husband moved out there anyway no longer exists, so they're trying to sell it quickly and move closer to the rest of the family. So far nothing has happened with it, and that can be discouraging as well. After Mom's surgery we want to be at her house...but it's so far from everyone should we need more help...so if any of you are looking for a 4 bedroom house in El Campo, feel free to email me :)
What else has been going on? Hmmm...I've been learning lessons...well, sorta. You know, I used to be this constant 'machine.' What I mean is that when challenges came up, I just took is as they came. I responded well because I had to; I felt like I was in these positions that required that of me. And there's this thing about abiding - the John 15 thing about abiding in the Vine. We can't bear fruit if we're not abiding in Him.
During the past year I've faced the most difficult challenges of my life. It's been one major thing after another. Lately I've been reflecting on my response to each of those challenges, and I'm understanding a bit more how John 15 applies to my life right now. See, when I was abiding (staying connected and in the Word), responding to situations with a right heart and attitude just happened. When I wasn't 'abiding,' my heart hardened, and I quickly reacted instead of responding.
I'm thinking of a particular situation our family had to face last September that really rocked me. I was doing well with it at first, but then I started to drift a little. Slowly my heart hardened, my attitude changed, and I got angry and bitter about the whole thing. So I decided I didn't care anymore and acted and did things that just weren't me. Don't worry - I didn't do anything crazy. I just acted in a way that was out of character for me. Thank God for great husbands who love us through our nonsense. Nathan just listened, loved, and tried to be as understanding as he could. He also loved me enough to tell me the truth about my attitude and heart and all that. Was there good reason for me to be so upset and angry and stuff? Sure, but it was my response that wasn't the greatest.
So now here I am in the yuckiest situation ever - watching my mom deal with the most ridiculous sickness. I hate it, and yeah, it makes me angry. When the symptoms of this stuff arise, I admit that I have to work really hard at directing my anger. The little things can get to me just as bad as the big things. Like today, it's hard not to be discouraged about my mom's weight loss. It means a setback. It could mean postponing her surgery. But really, what I need to do is chill out and look a little further. So what if her surgery is postponed? Sure, we want to more forward, but premature surgery could be bad news in the long run. So what if we have to wait a little longer? It just means mom will be better off. It means waiting, but waiting isn't necessarily a bad thing. It's what we do with the waiting time. Wait on Him. That's what I have to do daily. Wait on Him and see what He has in store.
It can be very discouraging to have this kind of issue so close to the date of the surgery. I wonder what in the world I'm doing wrong, what I could've done to prevent it, blah blah. The thing is - I think we're all doing the best we can considering the circumstances. All else is out of our hands. We have to just put our trust in God for the timing of everything.
Mom is also trying to sell her house. She lives about an hour and a half away from the rest of the family, and it's no longer convenient. The reason she and her husband moved out there anyway no longer exists, so they're trying to sell it quickly and move closer to the rest of the family. So far nothing has happened with it, and that can be discouraging as well. After Mom's surgery we want to be at her house...but it's so far from everyone should we need more help...so if any of you are looking for a 4 bedroom house in El Campo, feel free to email me :)
What else has been going on? Hmmm...I've been learning lessons...well, sorta. You know, I used to be this constant 'machine.' What I mean is that when challenges came up, I just took is as they came. I responded well because I had to; I felt like I was in these positions that required that of me. And there's this thing about abiding - the John 15 thing about abiding in the Vine. We can't bear fruit if we're not abiding in Him.
During the past year I've faced the most difficult challenges of my life. It's been one major thing after another. Lately I've been reflecting on my response to each of those challenges, and I'm understanding a bit more how John 15 applies to my life right now. See, when I was abiding (staying connected and in the Word), responding to situations with a right heart and attitude just happened. When I wasn't 'abiding,' my heart hardened, and I quickly reacted instead of responding.
I'm thinking of a particular situation our family had to face last September that really rocked me. I was doing well with it at first, but then I started to drift a little. Slowly my heart hardened, my attitude changed, and I got angry and bitter about the whole thing. So I decided I didn't care anymore and acted and did things that just weren't me. Don't worry - I didn't do anything crazy. I just acted in a way that was out of character for me. Thank God for great husbands who love us through our nonsense. Nathan just listened, loved, and tried to be as understanding as he could. He also loved me enough to tell me the truth about my attitude and heart and all that. Was there good reason for me to be so upset and angry and stuff? Sure, but it was my response that wasn't the greatest.
So now here I am in the yuckiest situation ever - watching my mom deal with the most ridiculous sickness. I hate it, and yeah, it makes me angry. When the symptoms of this stuff arise, I admit that I have to work really hard at directing my anger. The little things can get to me just as bad as the big things. Like today, it's hard not to be discouraged about my mom's weight loss. It means a setback. It could mean postponing her surgery. But really, what I need to do is chill out and look a little further. So what if her surgery is postponed? Sure, we want to more forward, but premature surgery could be bad news in the long run. So what if we have to wait a little longer? It just means mom will be better off. It means waiting, but waiting isn't necessarily a bad thing. It's what we do with the waiting time. Wait on Him. That's what I have to do daily. Wait on Him and see what He has in store.
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